A week of PN- update and good news!

 It's been a bit of a tough few days trying to juggle various aspects of my health. Without dwelling on the negatives that we're still working through with the occasional tearful moment I wanted to share some good news (and hope I don't jinx myself!)😂🙈I've been on PN for 7days now and for the first time in 10months I've GAINED weight!!🎉 It's b...
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Trust my luck!

When I began PN last week so many people said 'you'll notice a huge boost in energy straight away' and 'you'll feel so much better' but I just wasn't getting it, in fact I felt worse than when I was home. The past week I've been sleeping 14+ hours a day and still struggling to keep my eyes open, walking and staying mobile has felt like such a chall...
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Starting Parenteral Nutrition

 Feeling utterly terrified but also so grateful. A huge milestone passed as I've officially began Parenteral Nutrition since having my PICC line placed earlier this week. (The solution bag has to be kept under the red bag to protect it from daylight due to how sensitive it is.)Tonight I've managed to sneak away from my hospital room to the pat...
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Daisy the film star!

Earlier this week we had a super cool day filming at the NEC ahead of HOYS with Ashleigh Harley and her BAFTA award winning film crew for her upcoming film 'The Dark Horse'. Daisy wasn't overly keen on the torrential rain but behaved impeccably even with the scary cameras poking around in her face and chasing after her on wheels!🙈 🎥 So excited to s...
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Urology and catheters.

 Urology and catheters.The words half us of us may not understand, and the other half don't like to speak about. No one expects a 17year old girl to use catheters. Instead we think of older people, perhaps in hospital or care homes that don't have full bladder control, yet it is estimated that 1 in 2 of us will be affected by a urology conditi...
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Plans thrown up into the air like confetti!

 This isn't quite how I planned to spend this week so far, it seems my plans have been thrown up into the air like confetti!☹️🎉After feeling quite groggy and slow yesterday I was still adamant I wanted to get Daisy clipped and exercised ready to leave for a week of jumping at Arena UK today. I did manage to get everything ready to go...other t...
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Third time lucky...we made it!

 Third time lucky and we finally made it to the British Showjumping National championships at Stoneleigh! The past two years I've been due to compete at this show again, and each time I've ended up in hospital seriously ill. Two years ago I was granted day leave, mum was half way en route and Dad had driven to hospital with my show gear to get...
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Jay's journey begins!

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 A very special day…Jay made his debut at a primary school this morning during one of my school visits! For the past year we've been pursuing his career as a therapy pony, with the hope of being able to share the magic and happiness that he already brings to me with other children.Last year I visited Beacon primary Academy to deliver an assemb...
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WellChild Awards 2018

 This September I had the honour of receiving a WellChild award for inspirational young person. WellChild is the national charity for seriously ill children in the UK, providing nurses, advice and support to children and their families. HRH The Duke of Sussex (Prince Harry) is the patron of the charity, accompanied by his wife the Duchess of S...
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Brave Evie from Skegness finds a way to more success

Report Skegness StandardSixteen-year-old Evie Toombes from Skegness who is off to the Royal Lancaster in London to receive a WellChild Award for her inspirational courage in overcoming exceptional health needs.A 16-year-old girl from Skegness is hoping to meet the Duke and Duchess of Sussex when she collects her award for overcoming exceptional hea...
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‘Sit tight, I’ve got this’: British para rider clears extra 1.50m fence in 90cm class

Report by Horse & HoundA British para rider kept a cool head when she accidentally jumped a 1.50m fence in a 90cm class.Evie Toombes was riding as part of the British contingent at Pferd International München on 12 and 13 May.The 16-year-old was enjoying a successful show, finishing third in a class on the first day of competition aboard her ow...
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Education Not Discrimination

'EDUCATION.NOT.DISCRIMINATION' WITH HELP FROM WELLSPECT HEALTHCARE TO 'E.N.D' JUDGEMENT ON HIDDEN DISABILITYAs I've grown up I've become more involved with educating schools/societies on hidden disabilities.It's something I love doing and came about because I decided to 'come out' about my hidden disabilities (lower leg,bladder & bowel problems...
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Evie Toombes Foundation Ltd

For furture updates on the Evie Toombes Foundations follow hereFollowing an intense year of planning whilst Evie's health has declined- the launch of ETF will raise funds towards purchasing, maintaining & running a medical facility/horsebox.The reality is – 16yr old Evie cannot manage her complex medical issues away from home without compr...
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Inspriational teenager from Skegness becomes an ambassador for hidden disabilities

Report Skegness StandardA showjumping teenager from Skegness with a hidden disability has been inspiring others with her courage, determination and positivity.Evie Toombes, 16, was born with spina bifida which affects her lower legs, bladder and bowel. She also has a condition called gastroparesis which results with her having to be tube fed as her...
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SUMMER 2017 - TEARS, TANTRUMS, EMERGENCY ADMISSIONS! & WINNING

This summer has been a little crazy as usual. In fact this whole year has. Life, (as many people know from experience) can be so unpredictable without the added complications of our bodies not working 100%. Our bodies are incredible things , but they don't always fit in with our busy lives when it comes to big plans and unexpected wavers in our hea...
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I've won Youth Achiever!

I WON!!!!🎉 Thank you so much to everyone who voted for me in the youth achievers Skegness standard champions award. I'm so grateful to so many people for their ongoing support and I'm absolutely thrilled I won! . Butlins provided a lovely dinner and a fun night for all of the nominees and sponsors for the awards , it was great to see some familiar ...
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THE COUNTDOWN TO BOLESWORTH INTERNATIONAL

I've been looking forward to the para showjumping starting and it begins at Bolesworth on the 18th June.This is a huge International show and last year they helped me out by organising a special day for a good friend as a thankyou-so it's very fitting.Her name is Shannon Roe and she helped me cope with some difficult medical procedures by sharing h...
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SPRINGTIME UPS AND DOWNS!

Springtime has been interesting let's say! I've experienced some amazing things like a pony racing rallie with Ponyclub.This was something I've been desperate to have a go at but wasn't well enough last April.I borrowed a friends pony ,we trained on the gallops then I raced my brother over 4 furlongs-we were well matched on 2 Welsh ponies.Unfortuna...
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February 2016

 One thing I'm getting used to is the unexpected! Whenever I think my body is behaving it sneaks a surprise.The same goes for horses-whenever you think they're being good they get cheeky! Thankfully I've tested clear after 3 bladder infections through December to February but the antibiotics have played havoc with my tummy:( but it really show...
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2015 *WHAT A YEAR*

I don't think I would have coped if someone had told me what last year would involve.There were some incredible changes for me-most importantly my ACE operation.Life before was pretty rubbish before and it's not been easy but I do have a chance of a more normal life now.I didn't realise that everyone is so different in how they manage their bodies-...
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