Evie

Daisy update!

 A whole week of not seeing Daisy has got me feeling quite lost at the moment- having her usually gives me something consistent in life that I can rely on so not having that to balance all the struggles with my health is taking a lot of adjusting to. (Even though I've become far too weak to ride over the past few days.) It certainly brightened...
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Evie

Back in the place I was trying to desperately to avoid

It's the first time I've felt really vulnerable since being discharged from Nottingham last week. My potassium infusion was due and with it being classed an emergency due to low levels t(as always) it wasn't as option to skip or postpone. Going without my infusion and staying at home on lockdown (given how dangerous low potassium levels are) would ...
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Evie

The new normal it seems!‍️

I'm slowly adjusting to the changes we are all making to everyday life so far. It feels unfamiliar, strange and worrying- but with the reason behind these measures it is so necessary and important. I tried to get my Find A Way Not An Excuse head on (as I like to call it when I need to stop moping around!) yesterday I began to structure my days a li...
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Evie

Will my surgery be postponed? COVID-19

 Feeling suitably grim and unfortunately with news to match!🙈🙁 Me, mum, the gastro Dr and the colorectal surgeon all met today during wardround to speak. Due to the current climate our NHS has been dropped into with little notice, and the top priority being minimising risks for all patients, the decision has been made to postpone my surgery un...
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Evie

Day 6 and sleep feels like a distant memory

It's been a quiet couple of days as we don't see the doctors over the weekend unless there's an emergency. The past week has felt quite hectic and I'm still finding my feet with being in hospital all over again. Being an inpatient, inside four walls 24/7 and being surrounded by poorly people feels worlds away from my lifestyle at home in the fresh ...
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Evie

Day 4 - Evacuation day

Definitely a 'Find a Way Not an Excuse' kind of day!!!😳 Today has been eventful to say the least. Out of the entire hospital it was my ward that has been named the COVID-19 isolation ward…which meant we had the evacuate the whole ward and move all 22 patients to another place. F22 is highly specialist in the treatments they provide that are very hi...
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Evie

Day 3 and PICC line placement

 I had a 5 second 'I need my mum moment' this morning! 🙈It's so cold in my room on the ward because the radiators aren't working at the moment so I haven't been sleeping too well here so far. On little sleep, I was handed a surgical gown first thing this morning which could only mean one thing..a slot to have my PICC line placed has come up. W...
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Evie

Thug to therapy pony?!

 'Spud the thug' at the beach this morning 🤣 He's absolutely loving these little trips and now walks through the waves and water quite happily which is amazing considering how scared he was just a few weeks ago. It's proving to be a great way for him to begin socialising and embarking upon his therapy pony journey. After all, even a thug can o...
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Evie

Facing the inevitable

Feeling refreshed after a last minute trip out to Willow Banks with Daisy today- I'm due to be in hospital any day now, just waiting for that magic phone call to say there's a bed and we'll need to drop everything and go. It feels like we've been stood on our tiptoes the past week whilst trying to be ready, so some normality and fun was very welcom...
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Evie

Preparing for surgery

 'Can I still drink coffee a few days after surgery though?'😅☕️ Pre operative appointment done and dusted this week...and the countdown is officially on! One week until I'm admitted to hospital and a month until surgery. It's beginning to get quite real so I'm trying to find the small positives that are relevant to each step for me to enjoy an...
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Evie

A whirlwind past few days!

 I had my regular 'Duracell bunny recharge' (as we like to call it) of an 8hour potassium infusion on Friday to keep me going. Still pulling through the side effects and symptoms of the IV drip that really mess with my already weak heart. A few tears from the pain in my chest and dizziness whilst hacking Daisy out on Saturday, but all for a go...
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Evie

From the BBC Media City to Arena UK

 I spent an incredible day at the BBC media city with the Women's Sport Trust on Thursday after having the privilege of being accepted onto their Game Changers programme. It feels like such a surreal privilege to be accepted onto the programme (especially as the youngest athlete) along with 40 other outstanding women and athletes. After s...
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Evie

Ta Da!

​We call this our 'double clear after a poorly week' smiles!😁🎉Couldn't be happier with today at our first show of the year, 5.30 start to jump the 9am class..but all worth it to have some fun and feel a little more normal! I did manage to completely miss to fence no.2 but with a few clicks Daisy had my back and I soon got my butt into gear- it's al...
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Evie

New Year, new body?

 I'm trying not to get too caught up in making New Years resolutions based around general health. If I could, I'd love to improve my health in the name of new year new me, and it's amazing that so many people are keen to do that. But chronic illnesses don't renew their presence each new year, giving you a chance to start again. It's a weird pl...
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Evie

A very happy new year!

I'm both excited and terrified for what the next year holds. With possible surgery options and further battles with doctors most likely ahead, (since the not so seemingly human right to be healthy has to be fought for tooth and nail with my consultant.) But also the fun and plans I have with Daisy, alongside some big ideas for the foundation and my...
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Evie

A gap nothing can ever fill

 It is, with a very heavy and broken heart I want to share the news that my best friend, number 1 boy, and beloved therapy pony 'Jay' had a field accident last week, and is no longer with us. I've felt physically sick this past week from such a traumatic turn of events, but in time I know we will rebuild ourselves and continue to make positive...
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Evie

We made it to willow banks!

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 Instead of aiming to stay the whole weekend we decided to just travel up for the Christmas showjumping with Daisy today..who wasn't even interested in loading onto the lorry for the first 10minutes!😬 Ahh yes it was all worth the stress of escaping hospital and carting ourselves out in the cold, until I parted ways with Daisy in the take your ...
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Evie

Plans vs potassium

 I think the best way to ruin plans is to make them in the first place at this rate!🙈 Not a happy bunny! Show cancelled and swapped for hospital 🚫Supposed to be away competing at one of my favourite venues Willow Banks this weekend but had to change plans and come into hospital immediately for an 8 hour emergency potassium infusion. I only had...
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Evie

Confusing Doctors for 18 years!

After a restless time with leg spasms and cramp the night before, I was so pleased to be celebrating my birthday at home and not in hospital, even on minimal sleep! Jay the Shetland was very amused that I'd asked to open presents in the cabin with him, I'd say that was definitely a 'living my childhood (and current) dreams' moment- a birthday with ...
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Evie

Back where I belong

 Huge smiles to be where I belong after what feels like forever ...with Daisy the Dinosaur❤️ Feeling even better now I've seen this special girly and enjoyed a walk round the village🍂🍁 For now the plan is to be seen monthly by the nutritional team at Nottingham, in the meantime we've finally been able to secure an appointment for a couple of w...
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