5weeks later, the bags are packed, PICC line is out and discharge letter is signed. ITS HOME TIME!🎉
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2580 Hits
Can finally reveal the plans and things I've been working on the last few weeks whilst in hospital. So excited to announce I'll be speaking at Your Horse Live talking all things 'Find a way, not an excuse' in partnership with Jump 4 Joy THIS Saturday (after none other than Charlotte Dujardin and before Sir Lee Pearson) I've managed to b...
1754 Hits
1754 Hits
It's safe to say I've no need to visit Alton towers anytime soon, given how much of a roller coaster life is at the moment! There's been so many unexpected twists and turns these last few weeks, and it's left me feeling pretty detached and distant from home and normality. I often find comfort in knowing things are okay at home when I'm at hospital ...
1750 Hits
1750 Hits
I woke up today hoping yesterday was just a huge nightmare, but due to the absence of sleep I know it's not true. For those who have followed my journey for a little while you may remember 'Breeze', the horse we bought three years ago this winter. After nearly losing breeze when she had her field accident, I was too heartbroken to not give her a sh...
1775 Hits
1775 Hits
It's been a bit of a tough few days trying to juggle various aspects of my health. Without dwelling on the negatives that we're still working through with the occasional tearful moment I wanted to share some good news (and hope I don't jinx myself!)😂🙈 I've been on PN for 7days now and for the first time in 10months I've GAINED weight!!🎉 It's ...
2834 Hits
2834 Hits
When I began PN last week so many people said 'you'll notice a huge boost in energy straight away' and 'you'll feel so much better' but I just wasn't getting it, in fact I felt worse than when I was home. The past week I've been sleeping 14+ hours a day and still struggling to keep my eyes open, walking and staying mobile has felt like such a chall...
3251 Hits
3251 Hits
Feeling utterly terrified but also so grateful. A huge milestone passed as I've officially began Parenteral Nutrition since having my PICC line placed earlier this week. (The solution bag has to be kept under the red bag to protect it from daylight due to how sensitive it is.)Tonight I've managed to sneak away from my hospital room to the pat...
3334 Hits
3334 Hits
Earlier this week we had a super cool day filming at the NEC ahead of HOYS with Ashleigh Harley and her BAFTA award winning film crew for her upcoming film 'The Dark Horse'. Daisy wasn't overly keen on the torrential rain but behaved impeccably even with the scary cameras poking around in her face and chasing after her on wheels!🙈 🎥 So excited to s...
1804 Hits
1804 Hits
Urology and catheters.The words half us of us may not understand, and the other half don't like to speak about. No one expects a 17year old girl to use catheters. Instead we think of older people, perhaps in hospital or care homes that don't have full bladder control, yet it is estimated that 1 in 2 of us will be affected by a urology conditi...
2107 Hits
2107 Hits
This isn't quite how I planned to spend this week so far, it seems my plans have been thrown up into the air like confetti!☹️🎉 After feeling quite groggy and slow yesterday I was still adamant I wanted to get Daisy clipped and exercised ready to leave for a week of jumping at Arena UK today. I did manage to get everything ready to go...other ...
2011 Hits
2011 Hits
Third time lucky and we finally made it to the British Showjumping National championships at Stoneleigh! The past two years I've been due to compete at this show again, and each time I've ended up in hospital seriously ill. Two years ago I was granted day leave, mum was half way en route and Dad had driven to hospital with my show gear to get...
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2096 Hits
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1864 Hits
This September I had the honour of receiving a WellChild award for inspirational young person. WellChild is the national charity for seriously ill children in the UK, providing nurses, advice and support to children and their families. HRH The Duke of Sussex (Prince Harry) is the patron of the charity, accompanied by his wife the Duchess of S...
2686 Hits
2686 Hits
Report Skegness Standard Sixteen-year-old Evie Toombes from Skegness who is off to the Royal Lancaster in London to receive a WellChild Award for her inspirational courage in overcoming exceptional health needs. A 16-year-old girl from Skegness is hoping to meet the Duke and Duchess of Sussex when she collects her award for overcoming exceptional h...
2822 Hits
2822 Hits
Report by Horse & Hound A British para rider kept a cool head when she accidentally jumped a 1.50m fence in a 90cm class. Evie Toombes was riding as part of the British contingent at Pferd International München on 12 and 13 May. The 16-year-old was enjoying a successful show, finishing third in a class on the first day of competition aboard her...
3404 Hits
3404 Hits
'EDUCATION.NOT.DISCRIMINATION' WITH HELP FROM WELLSPECT HEALTHCARE TO 'E.N.D' JUDGEMENT ON HIDDEN DISABILITY As I've grown up I've become more involved with educating schools/societies on hidden disabilities.It's something I love doing and came about because I decided to 'come out' about my hidden disabilities (lower leg,bladder & bowel problem...
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2532 Hits
For furture updates on the Evie Toombes Foundations follow here Following an intense year of planning whilst Evie's health has declined- the launch of ETF will raise funds towards purchasing, maintaining & running a medical facility/horsebox. The reality is – 16yr old Evie cannot manage her complex medical issues away from home without com...
3201 Hits
3201 Hits
Report Skegness Standard A showjumping teenager from Skegness with a hidden disability has been inspiring others with her courage, determination and positivity. Evie Toombes, 16, was born with spina bifida which affects her lower legs, bladder and bowel. She also has a condition called gastroparesis which results with her having to be tube fed as h...
2482 Hits
2482 Hits
This summer has been a little crazy as usual. In fact this whole year has. Life, (as many people know from experience) can be so unpredictable without the added complications of our bodies not working 100%. Our bodies are incredible things , but they don't always fit in with our busy lives when it comes to big plans and unexpected wavers in our hea...
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1907 Hits
I WON!!!!🎉 Thank you so much to everyone who voted for me in the youth achievers Skegness standard champions award. I'm so grateful to so many people for their ongoing support and I'm absolutely thrilled I won! . Butlins provided a lovely dinner and a fun night for all of the nominees and sponsors for the awards , it was great to see some familiar ...
1858 Hits
1858 Hits