21st May, 2020- a year ago, was the day I got my second chance and we started TPN in hospital for good. I was unsure of whether to share pictures or not, as usually I stay clear from having to look at ones that bring back the stress and worry- but it seems apt as a way to celebrate how far we've come. You've all been here with me through it all, an...

 Feeling confused by some of my posts and what's actually going on? Me too🙈 To be honest half of the time I have no idea what's actually going on or happening - life is very much a case of learning as I go along at the moment and I've got used to rolling with the waves of whatever occurs with my health. 🤷🏻‍♀️ I can however share a few things t...

 I want to remain as positive as possible, but I'm not sure how much longer we can go on like this. Hanging on from one emergency infusion to another. They used to be 1x bag a month- now it's 4x bags a week because I've declined so fast. This is still safer than being admitted to hospital as an inpatient, but when fatality by covid is worst ca...

It's the first time I've felt really vulnerable since being discharged from Nottingham last week. My potassium infusion was due and with it being classed an emergency due to low levels t(as always) it wasn't as option to skip or postpone. Going without my infusion and staying at home on lockdown (given how dangerous low potassium levels are) would ...

I'm slowly adjusting to the changes we are all making to everyday life so far. It feels unfamiliar, strange and worrying- but with the reason behind these measures it is so necessary and important. I tried to get my Find A Way Not An Excuse head on (as I like to call it when I need to stop moping around!) yesterday I began to structure my days a li...

 Feeling suitably grim and unfortunately with news to match!🙈🙁 Me, mum, the gastro Dr and the colorectal surgeon all met today during wardround to speak. Due to the current climate our NHS has been dropped into with little notice, and the top priority being minimising risks for all patients, the decision has been made to postpone my surgery un...

It's been a quiet couple of days as we don't see the doctors over the weekend unless there's an emergency. The past week has felt quite hectic and I'm still finding my feet with being in hospital all over again. Being an inpatient, inside four walls 24/7 and being surrounded by poorly people feels worlds away from my lifestyle at home in the fresh ...

 I had a 5 second 'I need my mum moment' this morning! 🙈It's so cold in my room on the ward because the radiators aren't working at the moment so I haven't been sleeping too well here so far. On little sleep, I was handed a surgical gown first thing this morning which could only mean one thing..a slot to have my PICC line placed has come up. W...