A few Monday morning smiles because my potassium is finally within a normal and SAFE range!  220mmol of IV potassium infusions later and we can finally stop worrying and now monitor my bloods closely for any further drops.For anyone who's followed me for a while, you'll know I used to need infusion every week before starting TPN.  Two yea...

I've been like a flat battery the past few days so haven't been online much.  We're now on route to hospital as the potassium levels in my bloody were dangerously low, and magnesium levels high. I'll be admitted at QMC to have this addressed and hopefully treated, but it doesn't explain why I felt so awful! It's always upsetting to be rushed i...

I've grown up having people tell me I'm lazy, being told I need to get off my butt and crack on. But over the past few years, I really have learnt that rest isn't a luxury, we all need it. At one point, the idea of doing everything at 60mph and running on three hours of sleep was glamourised and made to look like the only way you can succeed. It mi...

  I'm hoping the Easter bunny will bring me some extra potassium so I can stay home this bank holiday weekend! 🐣We're always trying to make the 8hour infusions a bit more fun, so when mum found a pair of bunny ears it seemed only fitting to wear them for my infusion. Me and Spud spent the morning playing pro Easter bunnies, planning an eg...

It's been a quiet couple of days as we don't see the doctors over the weekend unless there's an emergency. The past week has felt quite hectic and I'm still finding my feet with being in hospital all over again. Being an inpatient, inside four walls 24/7 and being surrounded by poorly people feels worlds away from my lifestyle at home in the fresh ...

 I had a 5 second 'I need my mum moment' this morning! 🙈It's so cold in my room on the ward because the radiators aren't working at the moment so I haven't been sleeping too well here so far. On little sleep, I was handed a surgical gown first thing this morning which could only mean one thing..a slot to have my PICC line placed has come up. W...

 'Spud the thug' at the beach this morning 🤣 He's absolutely loving these little trips and now walks through the waves and water quite happily which is amazing considering how scared he was just a few weeks ago. It's proving to be a great way for him to begin socialising and embarking upon his therapy pony journey. After all, even a thug can o...

 I had my regular 'Duracell bunny recharge' (as we like to call it) of an 8hour potassium infusion on Friday to keep me going. Still pulling through the side effects and symptoms of the IV drip that really mess with my already weak heart. A few tears from the pain in my chest and dizziness whilst hacking Daisy out on Saturday, but all for a go...