When it feels like you're failing, take a look at how far you've come.

When it feels like you're failing, take a look at how far you've come. Even when everything feels impossible, remember how much you had to achieve to get to where you are today.   Part of having goals and keeping focussed is that you're always wanting to improve, progress and overcome the next hurdle. Whether we like it or not, success is...
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Straight back to hospital

 I've gone from needing infusions once a week to needing them every other day. Blood test results are all over the place and we have no clue as to what's causing it, but at least there's a reason I feel like a wet sock and keep collapsing at night.🙁 Safe to say I miss riding Daisy and competing so so much- it feels a world away from my current...
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Finding a new 'normal' during the pandemic

 I feel like I'm in the odd stage of finding some new normality in this pandemic, whilst also feeling more uncertain than ever.🤔 A big question that's been weighing on my shoulders recently has been 'how much poorlier am I going to get until we can resume normal healthcare?' I was due to have my surgery and be on the way to finding some stabil...
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Recently I've felt like just a patient more than ever

 After a call from 111 with my blood tests results, we headed straight to hospital early yesterday morning as my potassium levels had dropped critically low. This happens nearly every week and I often post about it, but it doesn't change the fact that every single time can be life threatening due to the effects low potassium has on the heart a...
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Day 4 - Evacuation day

Definitely a 'Find a Way Not an Excuse' kind of day!!!😳 Today has been eventful to say the least. Out of the entire hospital it was my ward that has been named the COVID-19 isolation ward…which meant we had the evacuate the whole ward and move all 22 patients to another place. F22 is highly specialist in the treatments they provide that are very hi...
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A whirlwind past few days!

 I had my regular 'Duracell bunny recharge' (as we like to call it) of an 8hour potassium infusion on Friday to keep me going. Still pulling through the side effects and symptoms of the IV drip that really mess with my already weak heart. A few tears from the pain in my chest and dizziness whilst hacking Daisy out on Saturday, but all for a go...
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