I'm 18 and I don't wear pants. ‍️

 I'm 18 and I don't wear pants. 🤷🏻‍♀️You've seen me dancing, smiling and keeping up with the animals via FaceTime (which has all been lovely.)But for the rest of the time, I've been like this. Running out of nappies.Sporting the hospital XL nappy pads that could wrap about the Eiffel Tower, twice. Cleaning myself up only to need a fresh nappy ...
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Confused by some of my posts?

 Feeling confused by some of my posts and what's actually going on? Me too🙈 To be honest half of the time I have no idea what's actually going on or happening - life is very much a case of learning as I go along at the moment and I've got used to rolling with the waves of whatever occurs with my health. 🤷🏻‍♀️I can however share a few things th...
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From the BBC Media City to Arena UK

 I spent an incredible day at the BBC media city with the Women's Sport Trust on Thursday after having the privilege of being accepted onto their Game Changers programme. It feels like such a surreal privilege to be accepted onto the programme (especially as the youngest athlete) along with 40 other outstanding women and athletes. After s...
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New Year, new body?

 I'm trying not to get too caught up in making New Years resolutions based around general health. If I could, I'd love to improve my health in the name of new year new me, and it's amazing that so many people are keen to do that. But chronic illnesses don't renew their presence each new year, giving you a chance to start again. It's a weird pl...
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A very happy new year!

I'm both excited and terrified for what the next year holds. With possible surgery options and further battles with doctors most likely ahead, (since the not so seemingly human right to be healthy has to be fought for tooth and nail with my consultant.) But also the fun and plans I have with Daisy, alongside some big ideas for the foundation and my...
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We made it to willow banks!

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 Instead of aiming to stay the whole weekend we decided to just travel up for the Christmas showjumping with Daisy today..who wasn't even interested in loading onto the lorry for the first 10minutes!😬Ahh yes it was all worth the stress of escaping hospital and carting ourselves out in the cold, until I parted ways with Daisy in the take your o...
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Plans vs potassium

 I think the best way to ruin plans is to make them in the first place at this rate!🙈Not a happy bunny! Show cancelled and swapped for hospital 🚫Supposed to be away competing at one of my favourite venues Willow Banks this weekend but had to change plans and come into hospital immediately for an 8 hour emergency potassium infusion. I only had ...
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Confusing Doctors for 18 years!

After a restless time with leg spasms and cramp the night before, I was so pleased to be celebrating my birthday at home and not in hospital, even on minimal sleep! Jay the Shetland was very amused that I'd asked to open presents in the cabin with him, I'd say that was definitely a 'living my childhood (and current) dreams' moment- a birthday with ...
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Back where I belong

 Huge smiles to be where I belong after what feels like forever ...with Daisy the Dinosaur❤️ Feeling even better now I've seen this special girly and enjoyed a walk round the village🍂🍁For now the plan is to be seen monthly by the nutritional team at Nottingham, in the meantime we've finally been able to secure an appointment for a couple of we...
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Home!

 5weeks later, the bags are packed, PICC line is out and discharge letter is signed. ITS HOME TIME!🎉
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